Resource Links

National Institute of Neurological Disorders and Stroke
http://www.ninds.nih.gov/disorders/chiari/chiari.htm

University of Winsconsin Hosipatal  

www.uwhealth.org

Childrens Memorial hospital 

  www.childrensmemorial.org 

Boston  Children’s Hospital
www.childrenshospital.org/az/Site699/mainpageS699P0.html

Ronald McDonald House Charities
http://rmhc.org/

Albany Medical Center
http://amc.edu

BRAIN
P.O. box 5801
Bethesda, MD 20824
(800) 352-9424

American Syringomyelia Alliance Project(ASAP)
P.O. Box 1586
Longview, TX 75606 – 1586
(903) 236-7079
(800) 282-7282
Fax# (903) 757-7456

Spina Bifida Association of America
4590 MacArthur Blvd. NW
Suite 250
Washington, DC 20007-4266
Phone# (202) 944-3285/ (800) 621-3141
Fax# 202 944-3295

National Organization for Rare Disorders (NORD)
P.O. Box 1968
55 Kenosia Avenue
Danbury, CT 06813
Phone# (203) 744-0100
Fax# (203) 798-2291