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Our organization strives to increase awareness of Chiari Malformation by providing information to families through awareness events, conferences and web site interactions. If you are a family that is forced to travel outside your insurance coverage area for treatments, please look into our travel assistance grant program. Our goals are to network families to the appropriate medical professionals for evaluation and or treatment, and to fund physician education and research advancements.
Race results for the Second Annual Nassau 5k Country Run
2ndAnnualEllaGraceChiari5KResults pas’s page for more informationpage
| Chiari Malformation patient is one step closer to having the wedding day she always wished for but she needs your help
Kitty wasn’t used to being the one needing help. She’s the one always trying to help others. Kitty and her husband are traveling missionaries, dedicating their life to the Lord and others seeking His word. She also dedicates her days to homeschooling their children. Kitty is hoping that one more dream will come true, not just for her but for her family. This is where she can use your help. When Kitty and Casey got married, they eloped but soon regretted leaving their loved ones out of their special day. Together, they vowed that for their 10th anniversary they would have a ceremony to renew their vows. Kitty and Casey are finalists in Entwined 2012, a national contest which would allow them to renew their vows and have the wedding they never had. The past few years have been rough at times and it took the support of family and friends to help them through it all. It would be a dream come true for the Robinsons to renew their vows with all their loved ones surrounding them. Please help Kitty and Casey realize their dreams of the wedding they never had. Watch their YouTube video and vote now on Facebook – the couple with the most votes wins the wedding of their dreams. |
Coming Soon!
Starting this spring, we will be hosting monthly no charge conference calls with expert medical professionals in various fields working with kids suffering from Chiari Malformation. Participants will have the opportunity to submit questions and have them answered during the call. This is a wonderful opportunity to ask an expert your most pressing questions! If you would like to be placed on a mailing list to be notified when the calls will be happening, you can sign up here. If you know what questions you would like to ask the professionals, please note them on the sign-up form. A sincere thanks goes to our financial supporters and to our medical professionals who have given selflessly to make this program happen. For questions with regard to this new program you can email us at defeatchiari@aol.com.
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