As we kick off our 2017 year – The Ella Grace Chiari Foundation will be undergoing some exciting changes!

Our focus is shifting to help even MORE families affected by Chiari Malformation – both in increasing the services offered by our travel grant assistance program and contributing more to funding ground breaking Chiari research.

We are in the process of planning TWO fantastic Comedy Show fundraisers this year, as well as a summertime golf related family friendly event… stay tuned for details!

With that said, we have to let a popular event go… we are bidding farewell to the Ella Grace 5K. While we love this event and bringing the community together for an awesome family fun day, it’s just too cost prohibitive to continue. We thank everyone who has come out for the past 6 years of racing, the volunteers who have given countless hours in planning this event, and the sponsors without whom we couldn’t do the event. Thank you!!!

As the Ella Grace Chiari Foundation approaches 10 years in existence, we look forward to the new and fun things we have planned and helping more families deal with the struggles of a Chiari Malformation diagnosis.

Thank you!




This is a site in progress; we’ll be adding more great content like a kid’s section (check it out here), a store where you can buy products to support our organization, and more! Check back often!

Contact Info:
Phone: (518) 334-6001
Email: DefeatChiari@aol.com